Online Resources

young adult focused resources

 

  • LIVESTRONG Young  Adult Alliance -  A coalition of organizations with the goal to improve the survival rates and quality of life for young adults with cancer between the ages of 15 and 40. The Alliance is committed to promoting research and the investigation of the problem, serving as a voice for the issue and promoting effective solutions.
     
  • LIVESTRONG Young Adult Alliance On-line Resource Portal - Young Adult Alliance Resource Page is intended to be a central source of AYA-related cancer information and services available on the Internet. The Resource Page is designed to make it easy for cancer survivors, families, and even health care professionals to locate accurate AYA-related cancer information. The five main sections of the Resource Page include: General Cancer Information, Physical Issues, Emotional & Relationship Issues, Practical Issues and Community Resources.
     
  • National Cancer Institute Adolescent & Young Adult Portal - This portal offers links to resources for questions about cancer, its treatment, clinical trials, and issues that may be faced after treatment. It also contains links to research studies and reports.
  • Fertile Hope - A comprehensive fertility preservation resource for patients whose medical treatments present the risk of infertility.
     
  • Planet Cancer - A community of young adults with cancer, providing support and educational services.
     
  • Treatment Option Tools – The Ulman Cancer Fund and NexCura are proud to provide these free, interactive treatment decision tools.  Learn about your treatment options, possible side effects, questions to ask your doctor, and more.
  • I'm too young for this! - i[2]y exists to ensure that every young adult affected by cancer is given access to the best age-appropriate support they are entitled to in order to get busy living at every stage of their survivorship.
     

 


General Cancer Resources
 

  • CancerQuest – This website teaches the biology of cancer. It assumes no previous knowledge on the topic and can help to inform and empower anyone who visits the site.
  • LIVESTRONG – Also  known as the Lance Armstrong Foundation, this website is a resource for someone looking into physical, emotional, and practical day-to-day topics on a variety of issues that affect cancer survivors.
     
  • American Cancer Society – This website is a resource to get answers to your questions about cancer, to find links to a great deal of related information, and to search specific types of cancer in order to make informed treatment decisions.
     
  • The National Cancer Institute - This U.S. government agency responsible for conduction and supporting research on cancer. Access information on clinical trials and more.
     
  • OncoLink - This website is run by the University of Pennsylvania Cancer Center. This is a great educational site for both patients and their families.
     
  • The Testicular Cancer Resource Center - An organization that provides invaluable information about testicular cancer. 
     
  • The National Coalition for Cancer Survivorship - This organization raises awareness of cancer survivorship and strives to eliminate the stigma of cancer by providing public policy leadership on legislative, regulatory and financial matters. It promotes advocacy among national cancer organizations for insurance, employment and legal rights for people with cancer. NCCS produces several excellent publications for survivors.
     
  • Cancer Care, Inc. - Provides free professional counseling, education and information, including referrals for patients. www.cancercare.org.
     
  • The Candlelighters - A group that provides support to adult survivors of childhood cancer.
     
  • The Cancer Hope Network - An organization that offers one-on-one support for cancer patients and their families by trained volunteer survivors. 
     
  • Patient Advocate Foundation - A national non-profit organization that serves as an active liaison between the patient and their insurer, employer and/or creditors to resolve insurance, job discrimination and/or debt crisis maters relative to their diagnosis through case managers, doctors and attorneys. 1-800-532-5274.
     
  • National Hospice and Palliative Care - A leader in providing end of life care and support. 
     
  • The Wellness Community / Gildas Club - A free program of emotional support, education and hope for people with cancer and their loved ones.   
     
  • Asbestos.net - An organization that provides invaluable information about mesothelioma and asbestos related diseases.
     
  • Mesothelioma Information  - The Mesothelioma Cancer Center offers the most comprehensive and updated information on asbestos exposure and mesothelioma including what to do if you have received a mesothelioma diagnosis.

 

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