Publications & Resources
Information is power in your journey as a cancer survivor. The Ulman Cancer Fund for Young Adults has developed several useful publications that can be very helpful in your battle against cancer.
Writings of Young Adult Cancer Survivors
Young people fighting cancer often find great comfort in hearing from other young adult cancer survivors; in knowing that they were not the only young adult facing cancer; and
in connecting with people their age that had been through this battle.
Each of us can benefit from the experiences and knowledge gained by those who have gone down this path before us… which is why UCF compiled the “My Way” book, a collection of writings by young adult cancer survivors about their experiences.
These original writings come in the form of letters, essays, journal entries, songs, emails, poetry, lessons, and lists. The Ulman Cancer Fund For Young Adults presents this collection with the hope that it will help others better understand and cope with their own cancer diagnosis, or with the diagnosis of a loved one.
Writing can be a useful and therapeutic tool for anyone facing the challenges of a cancer journey. You may find you want to examine and express some of your own dreams, fears, and concerns in this way.
We believe education and information are critical in the battle against cancer, and the sharing of ideas and resources will lead to the best possible outcomes for young adults living with cancer and their families.
LIVESTRONG Young Adult Alliance is a coalition of organizations with the goal to improve the survival rates and quality of life for young adults with cancer between the ages of 15 and 40. The Alliance is committed to promoting research and the investigation of the problem, serving as a voice for the issue and promoting effective solutions.
LIVESTRONG Young Adult Alliance Online Resource Portal is intended to be a central source of AYA-related cancer information and services available on the Internet. The Resource Page is designed to make it easy for cancer survivors, families, and health care professionals to locate accurate AYA-related cancer information. The five main sections of the Resource Page include: General Cancer Information, Physical Issues, Emotional & Relationship Issues, Practical Issues and Community Resources.
National Cancer Institute Adolescent & Young Adult Portal offers links to resources for questions about cancer, treatment, clinical trials, and issues that may be faced after treatment. It also contains links to research studies and reports.
LIVESTRONG Fertility is a comprehensive fertility preservation resource for patients whose medical treatments present the risk of infertility.
Planet Cancer is a community of young adults with cancer, providing support and educational services.
I’m too young for this! exists to ensure that every young adult affected by cancer is given access to the best age-appropriate support they are entitled to in order to get busy living at every stage of their survivorship.
BRICKS for Young Adults is a Pittsburgh-based organization that aims to connect young adult cancer patients to people and resources that may be useful to them as they undergo treatment — and beyond. We also hope to raise awareness about young adult cancers and impact survival rates through education and activism.
15-40 Connection seeks to create awareness for the fact that cancer is the No. 1 disease-related cause of death for 15- to 40-year-olds, and to promote early detection through advocacy and awareness.
Cancer and Careers has an easy-to-understand guide to managing your health insurance as well as a host of important practical information.
American Cancer Society provides a slightly less readable but very thorough source of information on health insurance.
Patient Advocate Foundation provides professional case managers free of charge to help you with coverage problems over the phone.
Coalition of Cancer Cooperative Groups provides links to co-pay relief programs and other financial assistance available to cancer patients.
Clinical Trial Matching Service powered by EmergingMed enables us to leverage the power of the Internet to increase treatment options for people with serious illnesses, and to speed up drug development through increased enrollment in clinical trials.
Cancer.net includes a guide to returning to school after cancer with tips on important subjects like managing chemo-brain.
Planet Cancer has several groups where people can share their experiences as college students with cancer. If you’re feeling isolated in a world of midterms and keg-stands, this is a great resource. Check out the discussion groups:
Cancer in college discussion group
Students discussion group
There are sites that exist just to help you find scholarships, and several of them have cancer-specific pages:
The Ulman Cancer Fund offers nearly a dozen <scholarships> for those affected by cancer.
Cancer and Careers lets you talk with a career coach, see a sample resume, find helpful charts and checklists to manage life and work during treatment, and much more.
American Cancer Society provides practical information on common workplace concerns and tips for navigating them, in addition to a list of work-related resources.
Cancer.net has some good suggestions for finding a job after treatment, whether you’re entering or reentering the job market.
Livestrong has a section of its website devoted to dealing with the practical aspects of a cancer diagnosis, including employment and financial concerns.
LIVESTRONG is also known as the Lance Armstrong Foundation. This is a resource for someone looking into physical, emotional, and practical day-to-day topics on a variety of issues that affect cancer survivors.
American Cancer Society is a resource to get answers to your questions about cancer, to find links to a great deal of related information, and to search specific types of cancer in order to make informed treatment decisions.
The National Cancer Institute is responsible for conducting and supporting research on cancer. Access information on clinical trials and more.
OncoLink is run by the University of Pennsylvania Cancer Center. This is a great educational site for both patients and their families.
The Testicular Cancer Resource Center that provides invaluable information about testicular cancer.
The National Coalition for Cancer Survivorship awareness of cancer survivorship and strives to eliminate the stigma of cancer by providing public policy leadership on legislative, regulatory, and financial matters. It promotes advocacy among national cancer organizations for insurance, employment, and legal rights for people with cancer. NCCS produces several excellent publications for survivors.
Cancer Care, Inc. provides free professional counseling, education and information, including referrals for patients.
Cancer and Careers has a wealth of resources and advice for navigating the workplace during cancer — including issues such as insurance, medical leave, and disability.
The Candlelighters are a group that provides support to adult survivors of childhood cancer.
The Cancer Hope Network offers one-on-one support for cancer patients and their families by trained volunteer survivors.
The Cord Blood Center has information on how cancers such as leukemia, lymphoma and others are treated with cord blood stem cells. Find out more about banking cord blood, life-saving stem cell treatments and what these advances in regenerative therapy mean when facing a cancer diagnosis. There is also a guide book for parents that provides details about the donation/banking process.
Patient Advocate Foundation is a national non-profit organization that serves as an active liaison between the patient and their insurer, employer and/or creditors to resolve insurance, job discrimination and/or debt crisis matters relative to their diagnosis through case managers, doctors, and attorneys.
National Hospice and Palliative Care is a leader in providing end-of-life care and support.
The Wellness Community / Gildas Club provides a free program of emotional support, education, and hope for people with cancer and their loved ones.
Cancer Monthly / Surviving Mesothelioma – Cancer Monthly LLC is the publisher of Surviving Mesothelioma and Other Cancers: A Patient’s Guide. Cancer Monthly is the only medical resource that reports the actual clinical results of cancer therapies for aggressive, advanced, and metastatic cancers. Currently it includes the results of treatments administered at over 260 hospitals. Cancer Monthly is one of the fastest-growing medical websites, with approximately 10,000 visitors each week. Visitors consist primarily of patients and their families, doctors, other clinicians, medical students, and medical librarians.
Asbestos.net is an organization that provides invaluable information about mesothelioma and asbestos-related diseases.
Mesothelioma Center has the most up-to-date and comprehensive information regarding Mesothelioma on the Web today — with information ranging from a complete list of symptoms to treatment options and steps to take after a diagnosis. *This website is sponsored by The Peterson Firm, LLP.
Mesothelioma + Asbestos Awareness Center is an online source for finding information about the types, causes, care, and treatment of mesothelioma. For young adults, this site can help bring recognition to prevention and early detection as those factors can help put a stop to this horrible cancer.
University of Cincinnati Health Library is a resource to help explain cancer to children by providing tips and links to other sites.
There Goes My Hero aims to find a match for every Leukemia patient and assist their families through a variety of support programs. Their mission is to restore hope to Leukemia patients and their families through increasing bone marrow registrants, providing nutritious meals, and supporting blood cancer research.
Wise Up. Get a Check-Up!
The Wise Up. Get a Check-Up! Campaign was launched to inform young adults about taking preventative measures in the fight against cancer.
Pediatric Cancer Car Care Kits
David Robbins, is working on his Eagle Scout award. For his project, he created “car kits” for patients to have and take from the hospital. These kits contain hand sanitizer, a mask, barf bags, tissues, an index card with information about your port, and other necessary items for patients with cancer that they can keep in the car. Click HERE to read the full story.
Resources To Share Your Journey
The Ulman Cancer Fund for Young Adults is excited to partner with CaringBridge and MyLifeline to offer young adults and families a free resource to build a website where they can share information with their families and friends during their cancer journey.
CaringBridge is a charitable nonprofit organization providing free websites that connect families and friends with each other and their community during a serious health event, care, and recovery. Founded in 1997, CaringBridge’s mission is to bring together a global community of care powered by the love of family and friends in an easy, accessible, and private way.
MyLifeLine.org is a 501(c)(3) nonprofit organization that encourages cancer patients and caregivers to create free customized websites. MyLifeLine’s mission is to empower patients to build an online support community of family and friends to foster connection, inspiration, and healing.