UCF Milestone: A Victory in Annapolis

Dear UCF Supporter,

Parenthood is a lot of things. Being a parent is frustrating and hard and miraculous and exhausting and beautiful and thankless and joyful and overwhelming. It is everything–sometimes all at once. And yet, it is by far the most rewarding, important thing I do. Like many, I could probably write about my experience as a parent until it’s an entire novel. But today is not about me. It’s about all of the to-be parents who will now be able to experience what it means to have a child, even after going through cancer treatment.

 Around 10 years ago, the Ulman Cancer Fund for Young Adults first sat down with young adult cancer patients and their families in a hospital room to seek out the ways in which we could make this experience better. What resources were they lacking? What had they wished they had known prior to treatment? This is where I first learned about the dire need for fertility preservation–and the extreme financial burden that comes along with it. At that point, Maryland law did not require insurance companies to cover fertility preservation, which would only add to the high costs that come with a cancer treatment. During treatment, the high levels of radiation can lead to the destruction of fertile egg or sperm cells, severely limiting the chances for patients to have a child of their own. For a young adult who already has to spend their weekends in a hospital bed, instead of out in the world gaining life experience, this seemed like twisting the knife. We had to do something.

<<Read the full Press Release HERE>>

After countless hours of meeting with elected officials, medical experts, and many courageous individuals who fearlessly told their stories, we succeeded in getting our bill passed through state legislation. It mandates that medical insurance companies cover the cost of preserving a patient’s fertility. In other words, just because you had cancer does not mean you can’t also be a parent–a no brainer, in my opinion.

Ultimately, this bill is about choice. Not everyone knows for certain that they want to become a parent, especially if they’re only in their young twenties, for example. But imagine what it might feel like if the option is entirely stripped from you, or if it’s because you can’t afford it? No one should ever have to face this decision, and now–at least in Maryland–they won’t have to.

It seems fitting that only two days after Mother’s Day we are able to come together to officially cement this bill in legislation. There has been so much hard work, bravery, and thought that has gone into crafting this bill, and I am so proud of our team and everyone who has had some contribution into creating this milestone for the Ulman Cancer Fund for Young Adults and the young adult cancer movement.


Brock Yetso,
President & CEO

Governor Hogan Signs Legislation Making Fertility Preservation Affordable for Young Adult Cancer Patients

The Ulman Cancer Fund for Young Adults spearheads passing of bill that will preserve the possibility of family for thousands of Marylanders

BALTIMORE – May 15, 2018 – The Ulman Cancer Fund for Young Adults (UCF) is pleased to announce that Governor Larry Hogan signed legislation this morning requiring insurance coverage of fertility preservation services for cancer patients who face infertility from their treatments. Maryland is the third state in the country to provide this important benefit.

 

This law will require certain insurers, nonprofit health service plans, and HMOs to cover standard services like sperm banking and egg banking for at-risk young cancer patients.

 

 

“For many young cancer patients, loss of fertility is an unfortunate side effect of treatment. But the fact is, we have the medical means to preserve the possibility ofparenthood for these patients,” said Brock Yetso, president and CEO of the Ulman Cancer Fund for Young Adults. “Parenthood is a fundamental life function that shouldn’t be eliminated due to disease or financial barriers. We’re proud to say that, in Maryland, fertility preservation is now an affordable reality for the majority of cancer patients.”

 

The financial cost associated with emergency fertility preservation is often too great for patients to manage, especially on top of other medical and treatment expenses. The cost is particularly high for young women, often exceeding $11,000 for egg retrieval and freezing.

 

According to a Maryland Health Care Commission Report, the costs for this benefit would be minimal – between $0.14-$0.24 per member per month – in added insurance costs.

 

“We strongly believe that having cancer should not preclude having children,” said Joyce Reinecke, Executive Director of the Alliance for Fertility Preservation. “Young cancer patients have already suffered enough, and they deserve the chance at a full and complete future after cancer. This coverage protects that chance.”

 

 

UCF advocated for this bill alongside the Alliance for Fertility Preservation, University of Maryland Greenebaum Comprehensive Cancer Center, the Shady Grove Fertility Clinic and countless patients and survivor advocates who testified at committee hearings supporting the bill. The bill will go into effect on January 1, 2019.

 

About the Ulman Cancer Fund for Young Adults

The Ulman Cancer Fund for Young Adults is the oldest and largest non-profit, 501(c)(3) organization in the United States solely focused on the unique needs of young adult cancer patients. Founded in 1997, the Ulman Cancer Fund mission is to change lives by creating a community of support for young adults and their loved ones impacted by cancer. The organization works at both the local and national level to ensure all young adults (age 15-39) impacted by cancer have a voice and the necessary resources to thrive. For more information about Ulman Cancer Fund, visit: ulmanfund.org.

 

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Media Contact:

Molly Dressel

Abel Communications for Ulman Cancer Fund for Young Adults

molly@abelcommunications.com

443-986-1173 (cell)

443-961-4410 (office)

 

 

Your Voice Matters – A word from Brock, President & CEO

 

Giving remarks at 2001 Columbia’s Cure

The month of April marks the beginning of spring.  For so many of us, this time of the year represents transformation.  As we transition from winter’s cold and darkness to summer’s warmth and light, spring gives us a chance to reflect, renew, and celebrate.  For these reasons and many more – the beginning of baseball, hockey playoffs, spring break, family BBQ’s, late nights playing ball in the yard with my kids – April also represents an important milestone in my life and the life of the Ulman Cancer Fund.  

Seventeen years ago this month, I was fortunate to be hired as the first full-time Executive Director of this incredible organization.  At the time, we had very little to show in regards to programs and impact, but we were a community strong and united, ready to drive change.  They still tell me to this day there were other candidates vying for the job and I was selected from the crowd, but I’m fairly certain I was the only one who applied.  At any rate, I landed the job and got to work.

I was young, naïve, and clueless but I had one of the most powerful assets you can have when you start something new – a burning desire to succeed; a story to tell; and a commitment to helping others who have experienced the pain I endured – losing a mom to cancer.  This April is particularly unique because it also marks the 20th year anniversary for the Ulman Cancer Fund.  As I reflect on the transformation and development of both Ulman and myself, I’m reminded and humbled by the incredible people I’ve met along the way who have helped us get to this point together.

Testifying in Annapolis in February 2018 with cancer survivors sharing their voice

We’ve accomplished so many great things over the past two decades – way too long of a list to include in this blog.  One special milestone that has been unfolding over the past couple of months is the result of many year’s worth of hard work and countless, brave cancer survivors sharing their stories.  

On May 8th, our team will travel to Annapolis, MD to join Maryland Governor Larry Hogan for a ceremony where he will sign a piece of legislation into law that will preserve parenthood for thousands of cancer patients indefinitely.

When the law becomes effective on January 1, it will mandate insurance companies to pay for a patient ’s fertility preservation prior to them starting their cancer treatment, which can render them infertile. This will make Maryland the 3rd State in the country to offer this important benefit, providing momentum for others states to follow suit.

After two year’s worth of meetings and hearings with legislators educating them on the importance of this bill, I am reminded of a powerful lesson I’ve learned during my time at Ulman – Your Voice Matters! Meeting after meeting, hearing after hearing, I watched as brave young men and women opened their hearts to share stories of pain, anger, perseverance, and conviction.  The tears in their eyes and smiles on their faces took me back to a place I haven’t been in many years. It took me back to the day I was alone in an office as the first and only employee at Ulman. Although I was fueled by a different experience then, I recognize so many of the same emotions that motivate these survivors now. After my mom passed away, I found my voice immediately, and I feel lucky I was able to harness it through my life’s work at Ulman.  

And so as I celebrate my 17th year at Ulman and our 20th year as an organization this April, I’m continually reminded of the power of having a voice.

Sometimes you need to advocate for those unable, or not comfortable sharing, and many times you need to do it for yourself.  

We still have so much work to do, but I’m encouraged by the progress we’ve made thanks to thousands of young adults and families who have chosen to share their stories as vehicles for hope, inspiration, and change.

 

Giving remarks at 2018 Blue Jeans & Bowties Ball

Giving remarks at 2018 Fight Night Baltimore

Cancer changes lives… SO DO WE!

 

 

 

Brock Yetso
President & CEO
The Ulman Cancer Fund for Young Adults

 

Baltimore Businesses Pledge to Cycle for Young Adults Fighting Cancer

MedStar Health Systems, M&T Bank, Merritt Clubs, Mindgrub, Allegis Global Solutions, and Shapiro commit to spinning for a cause during the first annual Ulman Cancer Fund for Young Adults Cycle to Inspire.

The Ulman Cancer Fund for Young Adults (UCF) has created an exciting opportunity for Baltimore businesses to join the fight against young adult cancer, while strengthening internal teams, encouraging corporate wellness, and broadening networks. On Friday, September 15th UCF will host Cycle to Inspire, a half-day team spinathon at M&T Bank Stadium. Baltimore-based organizations create teams of 10 employees who will be challenged to cycle for one of multiple 45-minute spin session throughout the day led by some of Baltimore’s best spin instructors. Teams will compete to win the ‘Every Mile Matters’ award for most miles covered and the ‘Every Dollar Counts’ award for the most money raised.

The proceeds from Cycle to Inspire will help to expand UCF’s young adult cancer support services by creating a patient navigation program within the MedStar Health System in Baltimore. This new program will provide essential resources and a community of support to young adult cancer patients undergoing treatment at MedStar institutions. This service complements existing programs UCF offers at the Johns Hopkins Sidney Kimmel Comprehensive Cancer Center, the University of Maryland Marlene and Stewart Greenebaum Comprehensive Cancer Center, Children’s National Medical Center, and the John P. Murtha Cancer Center at Walter Reed National Military Medical Center.

“We are excited to offer an opportunity for Baltimore-based businesses and organizations to get involved with our organization and have the ability to directly support services for young adults facing cancer diagnoses, and their loved ones, in the Baltimore area, said Brian Satola, COO at the Ulman Cancer Fund for Young Adults. “We have great organizations in MedStar, M&T Bank, Merritt, Mindgrub, and Allegis Global Solutions already committed and look forward to bringing additional companies and organizations on board.”

“The goals of the Ulman Cancer Fund are our goals too,” said Linda Rogers, Vice President of Oncology for the Baltimore Region of MedStar Health. “Raising funds, awareness, and support for the specific needs of young people with cancer is something we can all embrace. Here’s an opportunity to join forces with this incredible and compassionate organization, one we’ve long respected that directly benefits patients. We are grateful for the partnership and excited for the opportunity to participate in what is sure to be a fun way to promote survivorship and the fight against cancer.”

Team participation and sponsorship opportunities for Cycle to Inspire are available. For more information on how you can get engaged and serve young adults facing cancer, visit https://ulmanfund.org/cycletoinspire.

Professional Women Triathletes to Give back at Iron Girl Columbia Triathlon

COLUMBIA, MD – June 16, 2016 – The world’s first “female IRONMAN” won the title by default as she was the only woman in the race. That was 1979 and now there are more than 239,000 women participating in the sport of triathlon. The IRONMAN brand has been an inclusive ambassador of the sport since its beginning and has helped to propel the number of women participating in the sport through it’s Iron Girl brand. UCF Races, the organizer of the Iron Girl Columbia Triathlon presented by ClearShark, is making plans to celebrate women in the sport even more at the 2016 event on August 7th.

In its 11th annual year, the Iron Girl Columbia Triathlon presented by ClearShark, one of the largest women’s sprint triathlon events in the country, is inviting professionals to be a part of the race, but not actually race. There are no prize purses or elite waves here, just four women with a strong desire to give back to their hometown and women in the sport.

“One goal of integrating professional and elite women triathletes into the Iron Girl Columbia Triathlon weekend is to enhance the participant experience by adding events, training opportunities and advice from experts, “ said Erica Johnson, UCF Races Co-Race Director. “But our biggest goal is to further the prominence of women in the sport and all of these women are the type of women we want to expose our participants to, both on and off the course.”

The four women committed to participating in the weekend’s events include; 20-time Ironman Finisher, Alyssa Godesky; recent pro-card holder and medical student, Emily Sherrard; local elite triathlete, Howard County School Teacher and former Iron Girl Columbia Champion, Suzy Serpico and former USA Triathlon Athlete of the Year and Columbia Triathlon course record holder, Bec Wassner, who also has close ties with the Ulman Cancer Fund for Young Adults, the beneficiary of this event.

“This initiative struck a chord with me immediately,” said professional triathlete, coach and 20-time Ironman Finisher, Alyssa Godesky. “I’m passionate about propelling women already in the sport and inspiring others to get involved. This hits close to home for me.”

Along with Alyssa, participants will have the chance to meet and interact with Emily Sherrard who is recent medical school graduate, deferring her residency to pursue her dream of professionally competing in triathlons, Bec Wassner who is recently a mother of two and is now balancing a family with training and Suzy Serpico who is a full-time teacher and running her own training business while not sacrificing her own training. These testimonials of passion, perseverance and balance are all stories that women need and want to hear, and now they’ll get to right here at a local event.

A highlight event of the weekend will be a shakeout run with Bec Wassner in Centennial Park on Saturday, August 6. Other events include a panel discussion and an opportunity for autographs and one-on-one tips. In addition, all four women will be present on race day, August 7, 2016, not racing, but cheering on the more than 1500 women participating in the day’s sprint triathlon.

To learn more about all of the weekend’s events or register, visit www.ulmanfund.org/irongirl. Registration for the Iron Girl Columbia Triathlon presented by ClearShark will be open through July 22, 2016.

About the Ulman Cancer Fund for Young Adults & UCF Races

The Ulman Cancer Fund for Young Adults (ulmanfund.org) is a non-profit, 501(c)(3) organization that changes lives by creating a community of support for young adults and their loved ones impacted by cancer. Founded in 1997, the Ulman Cancer Fund for Young Adults works at both the local and national level to ensure that all young adults impacted by cancer have a voice and the necessary resources to thrive.
UCF Races was established in 2010 to further the mission of the Ulman Cancer Fund for Young Adults. UCF Races produces first class endurance events that enrich the community, celebrate the achievements of every participant and ultimately spread awareness of the young adult cancer fight.

ClearShark Named Presenting Sponsor of 2016 Iron Girl Columbia Triathlon

ClearShark Named Presenting Sponsor of 2016 Iron Girl Columbia Triathlon in Partnership with the Ulman Cancer Fund for Young Adults

COLUMBIA, MD – March 16, 2016 – The Ulman Cancer Fund for Young Adults is proud to announce an official partnership with IT Solutions Provider, ClearShark, which includes the presenting sponsorship of the Iron Girl Columbia Triathlon to take place on August 7, 2016. In addition to presenting sponsor of the August event, ClearShark will also be a featured sponsor of the Columbia Triathlon on May 15, 2016; both triathlons are organized by and benefit the Ulman Cancer Fund for Young Adults. Committed to supporting the local community and particularly organizations in the cancer space, ClearShark first reached out to the Ulman Cancer Fund in the fall of 2015 and the relationship has since developed into a formal partnership.

Named the best women’s event in the Mid-Atlantic, 2016 marks the 11th year of the Iron Girl Columbia Triathlon, a widely popular, sprint distance race, held in Centennial Park. This inspirational event is about empowering women toward a healthy lifestyle, and celebrating each woman’s unique journey toward the finish line. The addition of ClearShark as the presenting sponsor will increase on-course support and enhance the overall race day experience for participants.

ClearShark avidly supports local community events and activities, and it is an organizational priority to donate to local charities such as the Ulman Cancer Fund for Young Adults. Becoming the Iron Girl Columbia Triathlon official presenting sponsor is the most recent activity in a series of engagements in which the two organizations have joined together. In November of 2015, ClearShark participated in the Across the Bay 10K, the company’s mascot ran to raise money for the Ulman Cancer Fund, donating $2 for every runner the mascot passed. ClearShark donated $5,000 as a result of this effort. Since then, staff members of the Ulman Cancer Fund have shared ways the organization changes the lives of young adults impacted by cancer with ClearShark employees and provided them the opportunity to put together chemo care bags for patients currently in treatment.

“The Iron Girl Columbia Triathlon is an inspiring event that empowers women athletes and promotes a healthy lifestyle, something we’re thrilled to be a part of,” said Brittany Wilson, Marketing Manager for ClearShark. “We’re looking forward to having employees participate in the race in addition to motivating athletes throughout the day.”

“Receiving support from ClearShark at this level is exciting for our entire organization and will directly benefit not only the athletes participating in our two triathlon events this year, but on a greater scale, will benefit the young adults and families we work with,” said Brian Satola, Chief Operating Officer of the Ulman Cancer Fund for Young Adults.

Registration for the 2016 Iron Girl Columbia Triathlon presented by ClearShark is open online at www.ulmanfund.org/ucfraces through July 22, 2016. All proceeds from the race benefit the Ulman Cancer Fund for Young Adults.

About the Ulman Cancer Fund for Young Adults & UCF Races
The Ulman Cancer Fund for Young Adults (ulmanfund.org) is a non-profit, 501(c)(3) organization that changes lives by creating a community of support for young adults and their loved ones impacted by cancer. Founded in 1997, the Ulman Cancer Fund for Young Adults works at both the local and national level to ensure that all young adults impacted by cancer have a voice and the necessary resources to thrive.

UCF Races was established in 2010 to further the mission of the Ulman Cancer Fund for Young Adults. UCF Races organizes the Columbia Triathlon and Iron Girl Columbia Triathlon, first class endurance events that enrich the community, celebrate the achievements of every participant and ultimately spread awareness of the young adult cancer fight.

About ClearShark
ClearShark (clearshark.com) is an IT Solutions Provider and a 2014 and 2015 Inc. 5000 company based in Hanover, Maryland. ClearShark is a team of highly experienced sales professionals who provide their expertise to deliver the best overall enterprise storage, cyber security, virtualization, high performance computing, datacenter and cloud infrastructure solutions to the federal government. ClearShark’s award-winning partnerships with industry-leading innovators ensure that their customers receive the ideal combination of products and services to exceed their mission and goals.

 

Ulman Cancer Fund to Build First-of-its-Kind House in East Baltimore

Ulman Cancer Fund for Young Adults to build first-of-its-kind house in East Baltimore for young adult cancer patients and families
House announcement accompanied by launch of a $3 Million Capital Campaign


BALTIMORE, MD – February 3, 2016Among an audience of more than 700 supporters, patients and corporate partners at the organization’s annual Blue Jeans & Bowties Ball, the Ulman Cancer Fund for Young Adults (UCF) announced the official launch of a $3 Million Capital Campaign and the organization’s biggest project to date – building The UCF House. The Campaign is the most ambitious fundraising initiative in the Ulman Cancer Fund’s 18-year history and includes a priority to serve an unmet need of patients in the community, providing free housing for young adult cancer patients and their families while receiving treatment in Baltimore.

“Young adult patients age out of many other facilities or don’t find critical peer support at non-age specific facilities. With treatment protocols that require them to stay near hospitals for long periods of time, housing can be crippling financially and prevents some young adults from receiving treatment at top-notch Baltimore hospitals,” said Brock Yetso, President & CEO of the Ulman Cancer Fund for Young Adults. “Our organization exists to remove barriers and drive change – for years we’ve wanted to make this home away from home for young adult cancer patients and their families a reality, and now it is becoming one.”

Through a strategic collaboration with East Baltimore Development, Inc. (EBDI) UCF was able to acquire four attached row homes on East Madison Street, just north of the Johns Hopkins Hospital campus. “We’ve been welcomed into the community by EBDI and we couldn’t be more excited to be a part of the neighborhood’s transformation,” said Yetso.  UCF also has the support of District 45 legislators, Senator Nathaniel J. McFadden and Delegate Cory V. McCray, who are sponsoring a bond bill requesting funds for the project.  “Fostering relationships between the public and private sectors is key to addressing challenges in our city, and I am encouraged and inspired by UCF’s interest in helping to strengthen our community,” commented Delegate McCray.

Visioning sessions with medical professionals, patients, and caregivers, and planning meetings with architects and builders led to the design of a unique, comfortable, supportive, and empowering space that will include eight family suites, a gym/wellness space, a relaxation space, resource library, outdoor space in the forms of a backyard and a rooftop deck.  The UCF House will be conveniently located within blocks of Johns Hopkins and a short distance to other downtown Baltimore cancer centers.

Dr. Kenneth Cooke, Director of Pediatric Blood and Marrow Transplantation Program, The Sidney Kimmel Comprehensive Cancer Center of the Johns Hopkins University School of Medicine, works closely with young adult cancer patients and is supportive of UCF’s efforts to open The UCF House.  “Young adults fighting cancer face real challenges when it comes to finding affordable housing during treatment, in particular when they have to stay within a few miles of the hospital for 100 days after a bone marrow transplant.  The UCF House will meet this need and offer a place where young adults can find much needed peer support and a sense of community.”

The House will cost approximately $1 Million to build and open, and $200,000 to operate each year. UCF has embarked on a Capital Campaign to raise $3 Million with three priorities – to build the House and raise funds to operate it for the first three years, grow the organization’s endowment, and enhance existing programming for young adults and families impacted by cancer.

At the time of this announcement, the organization has reached two-thirds of the campaign goal during a “quiet phase” thanks to generous lead gifts from The Kirk Family Foundation, The Geaton and JoAnn DeCesaris Foundation, The Bradley T. MacDonald Family Foundation, and The Family of Jamie L. Roberts. Every UCF staff member has made a personal contribution to the Campaign, with total staff giving exceeding $100,000.  At the event Saturday night, when the Campaign was officially launched, an inspired audience made gifts totaling over $100,000 towards the Campaign.  The event raised well over $300,000 in proceeds.

The UCF House is expected to break ground before the close of the first quarter with a projected completion date before the end of the year.  The Capital Campaign is now public and every dollar donated will help change a life. About her family’s gift, Kellie MacDonald shared, “As a family that has personally been impacted by cancer and benefited from the great work of the Ulman Cancer Fund, we’re thrilled to support this Campaign and The UCF House.  We have a rare opportunity to be involved in a labor of love to improve our city and change the face of cancer care for young adults in Maryland. Together we can make a difference now, and I encourage others to consider joining us as we bring support and hope to patients and families fighting cancer here in Baltimore.”

To learn more about how you can make an impact, please visit www.ulmancancerfund.org/theucfhouse or contact UCF’s Development Director, Shara Boonshaft, at (410) 964-0202 x112 or shara@ulmanfund.org.

In Memory of Stuart Scott

stuart_scott

#facingtheissues, by Julie Lanahan

Stuart Scott

All of us here at the Ulman Cancer Fund for Young Adults had heavy hearts when we learned about Stuart Scott’s passing earlier this month at the age of 49 after a courageous battle with appendiceal cancer. He was loved by his family (he leaves behind two daughters – Sydni and Taelor) and beloved by his fellow ESPN colleagues, sports fans, athletes, the cancer community, the world.

When he was awarded the Jimmy V. award at the ESPYs in July, he gave a poignant speech about how despite everything that cancer had thrown at him, he intended to live life on his own terms. He was not going to let cancer dictate how he lived.

Scott gave us all a different perspective on the cancer fight. It wasn’t about winning vs. losing…it was about living each moment that you have with meaning and with purpose.

“You beat cancer by how you live, why you live, and in the manner in which you live.”

A cancer diagnosis can rob anyone of living their life in the manner they had always imagined. That was not the case for the late Stuart Scott and should not be the case for anyone living with or surviving cancer.

Scott lived with an incredible zest for life on his terms despite his cancer diagnosis. “He didn’t just push the envelope,” says sports radio host and former ESPN anchor Dan Patrick. “He bulldozed the envelope.”

In the David Wygant’s article below, he asks: “If Stuart Scott could crawl into your body, what would he do with your life?” Let us know.

Read David Wygant’s article here. Cancer Changes Lives…So Do We!

Be Proactive! Open Enrollment 2015

Oliver-Please-Sir-I-Want-Some-More-Health-Insurance

by an Ulman Navigator, #facingtheissues

With open enrollment for health insurance just around the corner, it is an important reminder that everyone facing cancer be able to have access to treatment. Historically, research has shown that young adults have the highest rate of uninsured of any age group. With the Affordable Care Act, young adults can remain on their parents’ health insurance through the age of 26. Open enrollment for health insurance begins November 15th and spans through March 31st. For more information about health insurance options for young adults with cancer, check out the following organizations:

Healthcare.gov

CancerCare

Cancer Legal Rights Center

Patient Advocate Foundation

By |November 14th, 2014|In the News, News|0 Comments

What is the Oncofertility Consortium?

blog_fti_10.10

post by Meghan Fitzgibbons, #facingtheissues

Do you know about the Oncofertility Consortium?

First, you may wonder what “oncofertility” is – this term refers to an interdisciplinary field that combines oncology and reproductive medicine, expanding fertility options for cancer survivors.  The Oncofertility Consortium is an interdisciplinary initiative that provides information and resources to help cancer patients navigate the complex fertility issues they face.

On the Oncofertility Consortium website, you will find a vast amount of information for patients, health professionals, scholars, teachers and students.  One of the most helpful aspects for patients is the Fertility Preservation Patient Navigator website, which provides information regarding fertility preservation with an interactive patient decision tool, stories of patients who preserved fertility before treatment, and tutorials about preservation procedures.  The decision tool guides patients through the key factors that are considered when making decisions about fertility preservation, including sex, pubertal status, and disease stage.

Patients will find also find detailed descriptions of their fertility preservation options.  Women can learn about egg, embryo and ovarian tissue banking, as well as ovarian transposition.  Men will find information about sperm and testicular tissue banking.

MyOncofertility.org and iSaveFertility are additional resources provided by the Oncofertility Consortium.  At MyOncofertility.org, patients can find answers to their fertility preservation questions, guidance for talking with physicians about fertility, and assistance in locating a nearby fertility preservation specialist.  With the iPhone application, iSaveFertility, patients, parents, and partners can view educational pocket guides about fertility preservation for men, women and children from their smart phones.

Finally, the Fertline (866-708-FERT) is available to connect patients with a fertility preservation program and refer them for consultations or procedures.  Patient Navigator Kristin Smith walks patients and providers through all aspects of the process, explaining options for each case, working with oncology teams, and providing insurance and financial guidance to patients and families.

If you or someone you know is diagnosed with cancer, or you are a healthcare provider working in oncology field, the Oncofertility Consortium is a must-see, amazing resource.

By |October 10th, 2014|In the News|0 Comments